I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

Since 2013, I’ve had the privilege of being a fitness coach, nutrition coach, public speaker, influencer, and businesswoman. While my true passion lies in adventure — particularly physical challenges ...

Life is strange and so are the many directions it takes you. Never did I imagine I would have a double-lung transplant in 2014 and eight months later pick up my belongings, my life, and my healthcare ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

The Michigan Chapter of the Cystic Fibrosis Foundation welcomes you! Our Chapter covers all of Michigan and Northwest Ohio, including Toledo, Perrysburg, Maumee, and Findlay areas. Volunteers are the ...

The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...

The cystic fibrosis transmembrane conductance regulator (CFTR) protein helps to maintain the balance of salt and water on many surfaces in the body, such as the surface of the lung. The CFTR protein ...

The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of ...

Pancreatic insufficiency (PI) remains a significant issue for the majority of individuals with cystic fibrosis. The majority of individuals with CF are pancreatic insufficient. The provision of safe ...